"LUKi & The Lights" Animated Short Film Illuminates ALS Diagnosis for Young Audiences
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ARLINGTON, Va., March 7, 2024 ~ New York City, NY - On March 22, the highly anticipated animated short film "LUKi & The Lights" will make its public premiere at Cinema Village. Created by Sascha Groen and her husband Anjo Snijders, who was diagnosed with ALS in 2017, the film aims to help young audiences understand and cope with the complexities of this devastating disease.

ALS, or amyotrophic lateral sclerosis, is a neurodegenerative disease that is always fatal and currently has no cure. Through the power of animation, "LUKi & The Lights" tells the story of LUKi, a charming robot who must navigate life after being diagnosed with ALS. The film's creators hope to use animation as a universal language to reach children from all cultures and help them understand the impact of ALS.

"We wanted to create a resource for parents to explain ALS to their children and show them that it's okay to talk about it," said Snijders. After his own diagnosis, he and his wife realized the need for tools to help children understand this terminal illness.

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Produced by Big Grin Productions, Global Neuro YCare, and the ALS Association, "LUKi & The Lights" aims to empower both children and parents to openly discuss ALS and provide them with the tools to navigate difficult conversations surrounding the disease.

Director Toby Cochran of Big Grin Productions shared that their team delved deep into understanding ALS and its impact while creating the film. Their goal was not only to entertain but also educate audiences worldwide about this misunderstood disease.

Melinda S. Kavanaugh, PhD, LCSW and President of Global Neuro YCare served as a content expert and co-producer for "LUKi & The Lights." She explained that LUKi is designed to be relatable for children from all backgrounds and offers a universal message of hope and understanding. Through LUKi's journey with ALS in an easy-to-understand and highly visual way, the film aims to bridge the gap between children and parents.

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The premiere of "LUKi & The Lights" at Cinema Village is expected to be a memorable event, bringing together filmmakers, ALS advocates, and members of the arts and entertainment community. The film has already received recognition at prestigious festivals such as the Oscar®-qualifying Florida Film Festival and Los Angeles International Children's Film Festival.

"We are thrilled to share Anjo's vision and Big Grin's beautiful animation of LUKi with audiences around the world," said Calaneet Balas, president and CEO of the ALS Association. "The film has already received a tremendous reception within both the film and ALS communities. We believe it has the power to change lives."

From March 23 to March 29, "LUKi & The Lights" will be open to the public at Cinema Village for audiences of all ages to experience LUKi's heartfelt story and his journey with ALS. Don't miss this opportunity to be moved by this powerful film that aims to raise awareness about ALS and bring hope to those affected by it.

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